After learning that my Valcyte (my nearly singular hope of living a life worth living) was going to be $6,000.00 a month WITH insurance, I called the manufacturer, Genentech, a division of McKesson and they, with no hassle whatsoever, gave me co-Pay card. With this card, I only pay $15 a MONTH for my Valcyte.… Continue reading VALCYTE $15 MONTH
This disease is a shape shifter. On the whole, I've had considerably more good days than bad days since I started following the Stanford protocol. By the way, I'm not sure if Stanford protocol is a living term but I don't know what else to call it. Dr. Bonilla cautioned me to avoid any crashes.… Continue reading Shape Shifting
I don't know how to do this. I don't know how to do nothing. Dr. Bonilla prescribed the strict avoidance of a crash. I understand I can't run (oh how I miss the endorphins). I understand I have to minimize stress (I don't work) but I also have to find a way to exist within… Continue reading Tooooooo Tired
What caused your son’s Down Syndrome, daughter’s autism? What did you do or not do? This is how I feel about questions regarding depression. A LONG time ago, I learned the difference between exogenous depression and endogenous depression. I also learned, mostly from living, that people do not experience one or the other. And it’s… Continue reading What Caused your Cystic Fibrosis?
When I was a little girl, maybe around five or six years old, I had a battery powered radio--remember the big, round C batteries? It held four of those. I don't remember how it became mine but I'm pretty sure it was a hand me down from my older sister. On boring, quiet Sunday mornings,… Continue reading The Radio People