Bird in Hand The broken bird hears my hand the golden hand is coming Coming to adjust your pulse so put the scissors down They’re dull, rusty, lefties Pointless A quiet reprieve for the non-flying If you find you’re missing calls Blanket the bird, make it dark There’s no plan to take off.
I crashed. Hard. Thankfully, I have insurance. Unfortunately, I get so tired of being my own advocate. I can not pinpoint what triggered this one but it has been bad, really bad. Today, Thursday, is the first day this week that I've not been predominately bed-bound. The other days I've woken up with migraines, swollen… Continue reading CRASH!
I was remiss in not mentioning my self-sacrificing husband. He has been my biggest supporter since day one. He listens and holds me, he books all of my travel, he fights self-serving insurance and rapacious prescription companies on my behalf, he takes over the laundry, dinner, carpools. He advocates for me, supports me and encourages… Continue reading MY HUSBAND
After learning that my Valcyte (my nearly singular hope of living a life worth living) was going to be $6,000.00 a month WITH insurance, I called the manufacturer, Genentech, a division of McKesson and they, with no hassle whatsoever, gave me co-Pay card. With this card, I only pay $15 a MONTH for my Valcyte.… Continue reading VALCYTE $15 MONTH
This disease is a shape shifter. On the whole, I've had considerably more good days than bad days since I started following the Stanford protocol. By the way, I'm not sure if Stanford protocol is a living term but I don't know what else to call it. Dr. Bonilla cautioned me to avoid any crashes.… Continue reading Shape Shifting